Rappresentanza della European Congenital Heart Organisation all'incontro del gruppo European Patient Advocate Groups (ePAGs) Guard Heart

Public Engagement
Incontro dei rappresentanti dei pazienti con malattie cardiopatiche rare in collegamento all'attività delle European Reference Networks
Location of the initiative:
Online (Zoom)
Date of the initiative:
April 27, 2020

Overview

Objectives

Gli obiettivi in agenda erano i seguenti: introduction of new members; extension of ePAG Network? Inclusion of countries with affiliated partners?, Covid-19 activities, ERN Board Meeting Paris 21 Feb 2020, ePAG objectives for 2020, patient journeys / registries / PROMs, ePAG participation in the ERN / with the experts, ECRD 2020, May 14-15 online

Type

Iniziative di tutela della salute

Linked Units

Research Areas

Concepts (2)

Keywords

Health, non-profit associations
No Results Found

Affiliation

Members

CALLUS EDWARD (Altro)