Sudden unexpected death in epilepsy (SUDEP) : a pilot study on truth telling among Italian epileptologists
Articolo
Data di Pubblicazione:
2011
Citazione:
Sudden unexpected death in epilepsy (SUDEP) : a pilot study on truth telling among Italian epileptologists / E. Vegni, D. Leone, M.P. Canevini, P. Tinuper, E.A. Moja. - In: NEUROLOGICAL SCIENCES. - ISSN 1590-1874. - 32:2(2011 Apr), pp. 331-335. [10.1007/s10072-010-0365-7]
Abstract:
Sudden unexpected death in epilepsy (SUDEP) is a syndrome where a person with epilepsy dies suddenly and no other cause of death is found. The question of informing patients and their families about SUDEP remains a problematic issue. The aim of this study is to explore whether Italian physicians interested in epilepsy believe that they should discuss SUDEP with patients and/or their families. A total of 315 questionnaire were distributed, of which 195 (61.9%) were returned. Seventeen respondents (8.76%) discussed SUDEP with all of their patients, 38 (19.59%) with the majority of patients, 120 (61.85%) with very few of their patients and 15 (7.73%) with none of their patients. No statistical differences among groups were found for gender, professional age (≤ 10 years; ≥ 11 years ≤ 20 years; ≥ 21 years ≤ 30 years; ≥ 31 years) and medical specialty (neurologists vs. others). Open questions offered insights into the physicians' problem of managing the negative emotions of patients/family and why the physicians decided to give information.
Tipologia IRIS:
01 - Articolo su periodico
Keywords:
Epilepsy; Questionnaires; SUDEP; Truth telling
Elenco autori:
E. Vegni, D. Leone, M.P. Canevini, P. Tinuper, E.A. Moja
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