A multidisciplinary approach improves quality of life perception in patients with amyotrophic lateral sclerosis
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Data di Pubblicazione:
2009
Citazione:
A multidisciplinary approach improves quality of life perception in patients with amyotrophic lateral sclerosis / C. Lunetta, V. Sansone, M.C. Panzeri, F. Pagnini, G. Meola, M. Corbo. ((Intervento presentato al 19. convegno Meeting of the European Neurological Society - ENS tenutosi a Milan nel 2009.
Abstract:
Objectives: A multidisciplinary approach, including physical therapy
assisted programs, in neuromuscular disease patients has proven to
improve quality of life (QoL) in Amyotrophic Lateral Sclerosis (ALS)
patients. The effects of physical exercise in patients with ALS are
controversial but there are indications that QoL improves. The general
objective of our study is to verify whether management in a multidisciplinary
center improves perception of quality of life in patients
with ALS. More specifically, we wish to determine whether an
individualized physical exercise program improves QoL as perceived
by the patients.
Methods: 15 patients (8 male, 7 females, age range 51-76, mean
61.57 ± 8.38) with diagnosis of ALS were subjected to: (1) MMT;
(2) ALS-FRS-r; (3) FVC; (4) Therapeutic exercise (i.e. active
assisted and passive mobilization, and stretching); (5) McGill
QoL Single-Item Scale (MQoL-SIS) before access to the multidisciplinary
clinical center and at discharge after the physical
program.
Results: When the patients were asked about their symptoms,
physical symptoms subscore was better after the recovery than on
admission (respectively 16.50 ± 6.69 and 21.43 ± 5.93, p = 0.017).
Moreover, the subscore about existential well-being showed a significant
improvement at the discharge compared to admission
(respectively 45.93 ± 7.16 and 41.57 ± 9.29, p = 0.019). The other
subscores (psychological symptoms and support domains) did not
show any significant change.
Conclusions: A multidisciplinary approach, including an individualized
physical exercise program, appears to provide an improvement of
the physical symptoms and existential well-being a perceived by ALS
patients. These results emphasize the necessity of a coordinated multidisciplinary
care between specialist and therapists for ALS patients.
We wish to further explore quality of life perception in patients with
neuromuscular disorders as a result of a physical exercise program in a
multidisciplinary context using INQoL, an individualized QoL scale,
specifically constructed for patients with neuromuscular diseases. This
scale will possibly allow us to better correlate aspects of QoL related to
the muscle condition, which may have been underscored by the more
generic measure of QoL.
Tipologia IRIS:
14 - Intervento a convegno non pubblicato
Keywords:
quality of life ; multidiplinary approach ; yotrophic lateral sclerosis
Elenco autori:
C. Lunetta, V. Sansone, M.C. Panzeri, F. Pagnini, G. Meola, M. Corbo
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